Showing posts with label advocacy. Show all posts
Showing posts with label advocacy. Show all posts

A Powerful Article From A Doctor

I just read this, it's long, but very educational and enlightening. I really hope you can take a few minutes to read this powerful testimony. It is really an amazing piece of writing.

From the Doctor Himself

A Message On Selectively Aborting Babies With Down Syndrome

Please Read my Post from January if You Are Interested. I am going to be sending this to As many publications as possible.

"Nomal" Blatantly Stolen From Alice's Blog

Imagine If Our Doctors All Told Us this when we were expecting our "Typical" children! Thank you Alice for posting this fantastic letter! You Have to read this! It is so witty and Well Written! It was published by the DS Org. in the UK. I love it, I love it!


"I'm very sorry, I have the results of the genetic tests and they have confirmed our suspicions that your fetus is what we call...Normal.
Some people prefer the terms "Ordinarily Challenged" or "Normal Syndrome". The syndrome can be easily identified by a complete lack of any interesting genetic characteristics. I know this will come as a shock to you, but you should be aware of what this is likely to mean.

If your fetus manages to survive the rest of the pregnancy and the birth, which is becoming more common these days, he or she will face some daunting challenges. Children who suffer from normalcy are prone to heatlh and psychological problems. It is almost certain that the growing child will suffer a seemingly endless stream of viruses. They will frequently damge themselves, and sometimes others, from their excessive energy.

Their relentless demands will put a strain on your existing family and, of course, your relationship with your partner will suffer, and possibly end in a painful and acrimonious separation. Any children you already have, even if they also suffer from normalcy, will be jealous of the newcomer and all their extra attention. Many siblings are liable to be psychologically scarred by the new arrival.

I need hardly mention the financial consequences, although disastrous, they will be nothing compared to the emotional turmoil your life will suffer.

After a while, you may be lucky and find they can be kind and loving young children. They may find some temporary happiness in things such as music, dancing, food or playing with toys.
But if they survive early childhood, a Normal child is almost certain to grow into a Normal adolescent. Your years of sacrifice will be thrown back in your face as they become disobedient, wild and reckless. Unable to find happiness and contentment, they will treat you with contempt until they manage to leave home. Even then the suffering will continue as they will often return to try and extract money. They will blame you for their own faults and leave you bitter and twisted.

They may well become criminals, over a quarter of Normals will have trouble with the law, many will spend time in jail. Many will have problems with alcohol or drug abuse. Normal marriages are often unhappy and short and over half end in divorce.

Even if they become successful this is likely to be because of the often observed tendency of Normals towards excessive greed. The chances of them sharing their success with you are remote and they will tend to see you as an embarrassment.

Finally, Normal people are likely to die before their time. 23% will die of cancer, 33% of heart disease. Hundreds every year in this country alone are so distressed by their condition that they take their own life. I'm sorry to say that many will have had a lonely, painful and pointless existence.

I am afraid that Normal Syndrome is a genetic condition that affects every cell of the body, and so is impossible to cure."

Advocate? Getting Proper Info Into Ob/Gyn Offices



What a fantastic Day! I met with the Head of our local Down Syndrome (T-21, I'm on a push to re-name this whole thing!) Organization and we made a lot of progress. It's the only Organization in South Florida from Miami to West Palm Beach (Huge Area). It's called The Gold Coast Down Syndrome Organization. Teri and I had such a great talk. She ended up telling me that it takes the Few Passionate People to Really roll up their sleeves and dig in deep to make changes. She also said she saw the same thing in me that she has herself, a need to help out the "Underdog". I told her how from when I was little, If I saw someone getting picked on or made fun of, I was the one to stick up for them and put the bully in their place. I've always been one to have to speak up about things, not take anything lying down, she said that's how she is. It really hit home sitting in her office that, maybe I really am an advocate deep down inside and it's taken a really long time to just resign to this fact and take ownership of the title! ADVOCATE?!!!


So we got together a game plan. I will get a list together of every single OB/GYN office in South Florida, and personally contact them to arrange for a short presentation/sit down to give updated information on what Down Syndrome is Today, not what it was 50 years ago. I will also talk to the Genetic Counselors (who, little did I know, are actually paid representatives of the Drug Companies who administer the Prenatal Tests!!!!). Talk about a conflict of interest! Do you think expecting Mom's have any idea at all that the Genetic Counselor is just a Cleverly Disguised Drug Rep?!! Wow! This was very eye-opening information that Teri was telling me. But, she said she knows a few personally, and said they would be willing to help me find a larger List of genetic Counselors in order to contact several at a time. If anyone out there reading this has any connections to a large list of Genetic Counselors by Area, that would be fantastic!

Of course I had to throw in a few pictures of Jaden Roc, because he can feed himself!!!

So, I'm putting together a more concise, appealing, packet together with my presentation, and off I go, making calls. I will let everyone know just how far I get in this arena. But I'm pretty persistent so I have a feeling I will make strides fast! I'm really looking forward to passing on this information! More Tomorrow.

A Message On Selectively Aborting Babies With Down Syndrome



Well, this morning I woke up with my usual array of ideas & thoughts and decided that this is going to be the year where I make things happen. Ever since Jaden was born, I have been OBSESSED with Changing the Way Doctors and Nurses and Genetic Counselors give information to New and Expecting Parents about Down Syndrome. I've talked to tons of other parents who all agree that things definitely need to change with the Negative, Outdated, Innacurate information they give you on Down Syndrome which Drastically Sways women's decisions to abort. After all, who wants a "Cripple/Delayed/Retarded" person in their house. Because this is how the information is portrayed. It is still very dismal and not positive at all. Parents agree that if they had spoken to other parents who had kids with Down Syndrome, they would have felt much more hopeful about the reality of having a child with DS than just based on what the Doctor/Nurse/Counselor told them.

There are some extremely Frightening Statistics out there regarding Selective Abortion & Down Syndrome! Does the general public have any idea or even care about what is going on in Doctors Offices every day across the country? Women are Selectively Aborting Approximately 80-90% of all Babies who May Have Down Syndrome! Is it that we have become so Dis-Attached from our feelings and so De-sensitized as a Nation Collectively that this statistic doesn't seem to bother anyone?

OBGYN offices can be a very sterile, impersonal, unfriendly environment. Even at a time when you expect the world to be welcoming you everywhere with huge grins and friendly demeanor's, it's a quick wake up call at the Doctors offices when you are there for your monthly checks as a Pregnant woman. Doctors spend about 2 minutes with you, in fact my ObGyn, would say hi, shake my hand, use the ultrasound machine on me, tell me everything looked good and send me on my way. That is literally how every visit went until I delivered my Second Child, Jaden. He was a nice guy, but very quick, no questions from him, and I had no questions for him. I felt uncomfortable asking him anything. When they sent me over to another office, The Parinatalogist for my Level II Ultrasounds because I was 35 years old, it was an even more unfriendly and cold environment where women waited like cattle in the waiting room. All talking to each other about why they were there. I always felt Like I didn't belong there. So many women were on medications to keep them from having the baby early, with other complications, I never had any of this, I always felt completely fine.

I remember the Genetic Counselor talking to me about my Statistical Risks for "This and That", and thinking to myself, she sounds like a robot, and she wouldn't remember me 5 minutes from now. She suggested all the different testing to determine if my baby was just fine, until I asked her, "Isn't that what these High Powered Ultrasounds are supposed to determine? Can't you see all the blood flowing the veins, all the Chambers of the heart, fingers, brain etc?" Well "Yes" she said, however the ultrasound can miss Down Syndrome very often because the baby may "look perfect" however my not be. "Sometimes, DS can be very hard to spot." Well, I opted for the regular blood tests and told her I would be fine. She shook her head in dismay, I obviously not doing what most women did, and she then said, "well, O.K. then."

I remember this day because I was 13 weeks pregnant, and going for my first Level II Ultrasound. I knew everything was ok, and sure enough it was. The technician was very thorough and I was in there for about 30 minutes. She said everything was perfect, and the baby looked perfect! That's what I knew also, because I was already feeling him move!

Now this isn't a post to recount every minute of my pregnancy but simply I'm remembering the feelings I had going to these offices when pregnant. I remember thinking that no one in these offices made you feel like you were going through the most special time in your life, no one felt excited for you or treated you like you were any different than some stranger walking down the street. I also remember every magazine, newspaper, and TV article reminding you of all the reasons women have babies with Down Syndrome and how to avoid having one of these babies yourself. I remember feeling sorry for all of those poor women who end up with these "mistakes" of nature. My baby was "perfect" after all, all of the tests said so.

I now think, does anyone in these offices, or in the entire medical profession as a whole, ever think about the words they say to pregnant women or think about the information they pass on? Does anyone think about the babies living and growing inside these women? I feel very sad that our Medical Community is so obsessed with creating the Perfect Human and discarding anything not Deemed perfect that unless we start gathering together to change this, and stand up against this Horrific Collective Mentality it is only going to get Much Worse!


Everyone remembers the Holocaust, or at least has learned about it. The Word associated with the Holocaust is Eugenics. Taken from Wikpedia:

The term eugenics is often used to refer to movements and social policies that were influential during the early 20th century. In a historical and broader sense, eugenics can also be a study of "improving human genetic qualities". It is sometimes broadly applied to describe any human action whose goal is to improve the gene pool. Some forms of infanticide in ancient societies, present-day reprogenetics, preemptive abortions and designer babies have been (sometimes controversially) referred to as eugenic. Eugenics can be considered a flawed concept because not all abilities are expressed in a particular individual. Special abilities may only appear after many generations down the road in a very different environment. Earlier proposed means of achieving these goals focused on selective breeding, while modern ones focus on prenatal testing and screening, genetic counseling, birth control, in vitro fertilization, and genetic engineering. Opponents argue that eugenics is immoral and is based on, or is itself, pseudoscience. Historically, eugenics has been used as a justification for coercive state-sponsored discrimination and human rights violations, such as forced sterilization of persons with genetic defects, the killing of the institutionalized and, in some cases, genocide of races perceived as inferior.

I find all these different meanings interesting. They all really say the same thing though, that we humans take great pride in determining who is inferior to ourselves and who doesn't deserve the same right as ourselves. Isn't it fascinating that Scientists who usually come up with these tests are usually intelligent people in one sense of the word, yet almost crippled with an underdevelopment of the part of the brain which evokes compassion, understanding, acceptance, higher love, a soul and the true understanding of LIFE? You only need to have one experience in your lifetime with someone a little less Obviously "able" than yourself to see, that you are No Better and certainly NO More Deserving than he. Really, who are we to decide who is able to live, and who isn't? Well, We are deciding, collectively as a society, as a country, who deserves a Life, and who Doesn't! What is going on? It's almost like the twilight zone if you start to really think long and hard about this subject.

With prenatal testing getting more and more precise, they will soon allow every expecting parent the option of knowing exactly what may be wrong or right with their child?! The Extremely frightening Fact is, since 1 out of 3 children/people will have some sort of "disability" within their lifetime, Does this mean that Ultimately 33% of the population doesn't deserve to live? Does this mean that every human who may have vision loss, hearing loss, cancer, amputation, paralysis, heart disease, diabetes, asthma, manic-depression, adhd, autism (1/166 babies) and the millions of other possible "flaws" within the human condition, doesn't deserve to live either? Is all the prenatal testing about Protecting our society from the less than perfect, or is it really about keeping "health Care" costs as low as possible? Because if this is the case, it isn't going to help. Imagine if we just went into society and selectively killed off all of the individuals with various ailments, disabilities and mental problems? Would we really have a perfect world? Or would we be a disgusting place where no one ever knew the True Meaning of LIFE?

I do know this, My Child has a Soul, A HUGE personality, Feelings, A Brain, A Heart, A Laugh, A Cry, A Voice, A Touch, A Sense of Humor, A Determination, A Feistiness, A Temper and most of all A LIFE!

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